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Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...
Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is ...
Proposed cuts to Medicaid and the ACA marketplace will rob people with cystic fibrosis of critical health coverage needed to ...
After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life.
Cystic fibrosis is caused by mutations in the gene responsible for producing the cystic fibrosis transmembrane conductance regulator (CFTR) protein. For this reason, scientists are exploring ways to ...
During CF Awareness Month this May, we are inspired by every person with cystic fibrosis and members of the CF community who support them. This year, we are especially proud to celebrate our 70th ...
Disclaimer. This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but ...
Disclaimer. This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but ...
It’s three weeks before the Kansas City Great Strides walk as I’m writing this, and I’ve decided my husband and I will take our twins to the walk this year. We haven’t been to one since before our ...
Disclaimer. This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but ...
Strategic Plan Survey Results. Take a closer look at the findings from the Long-Term Strategic Plan Input Survey, which collected insights from nearly 2,000 individuals in the cystic fibrosis ...
This report offers key insights from last year’s CF Foundation Patient Registry data. The Registry includes data from people with CF in the United States who visit CF care centers and agree to ...
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